This blog is a diary of Duncan & Rod’s effort to prepare for and visit Norway to cycle a Tandem 500 miles from Røros to the Arctic Circle to raise awareness and funds for the Batten Disease Family Association.

The BDFA is a charity whose mission is to enable everyone who is affected by Batten disease to live life to the full and to secure the care and support they need until we find a cure.

My own children, Ellie Mae & Caleb both suffer from Late Infantile Batten Disease.  We have been privileged to receive invaluable support from the BDFA as we seek to enrich our children’s lives as they cope day by day with this terminal illness.


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